I successfully rounded off the first set of chemotherapy yesterday morning without getting sick from it at all, so I am much relieved about that. Whatever medicines I got to prevent that from happening, worked and now I can only hope that they will keep working for the two remaining sets that I have coming up. I have been told that every experience is different and to not count my blessings ahead of time. You know, of course, that I will do that anyway being the optimist that I am.
I was called yesterday and told that the preamble to my radiation therapy is starting this coming monday with an interview and another pet scan to establish the exact location of the tumors in my lymph system. Measurements will be made so that the radiation can be directed exactly at these locations and not a millimeter away from them so as to spare as much healthy tissue. Each time I get radiated, I will have to be in the same position that I was in before.
The radiation starts on the 28th of July and will take place in the morning and the evening and itself only lasts a few minutes. It is getting into the right position that is crucial. I will go home between these two sessions. I have transportation arranged that is paid for by my health insurance company. I have been told that the radiation therapy with zap my energy and I am getting 39 days of it. That, along with the chemo, will have me worn out in no time, I think.
Because the weather has been so hot, it has been uncomfortable to wear scarfs, and at home I walk around with a bare head. When I go out, I wear a cap, but yesterday I ordered some light weight knit hats that should get here today. They were on sale and come in very bright colors like apple green and orange-pink. I think I will be happy with them for every day use and leave the scarfs for special occasions when I want to get dressed up. Having a bare head feels the best, but I realize I have to keep it covered up a bit so as to not be too confronting. The Cowboy did discover a widow's peak yesterday and told me that was something special.
I have to enjoy these three days that I have coming up that are going to be relatively quiet and uneventful and then all hell breaks loose. I am going to have to be ready as I will ever be.
7 comments:
I'm glad to hear the new steps in your treatment plan have gone well. This is good news!
And after your radiation treatments, you'll be able to give us "glowing" reports of the care you received.
I do hope all the rest of this goes well. I know it is not an easy time will all these things happening to, plus any side-effects you may experience.
Blessings and Bear hugs!
I'm glad you are getting your treatment so quickly. Make the most of these quiet days!
Glad that you're finding everything bearable.
Apart from the risk of sunburn/ heatstroke to your head, if you want to go around without head gear then that's not confrontational.
I used to go out like that when there was just a hint of hair coming back. At first there'd be stares but not for long. People realise today about chemo etc as so many people have to have it.
You can get some lovely head gear on line.
Symptoms from Radiotherapy doesn't generally kick in until about half way through the treatment.
If they recommend smoothing cream on your skin, make sure that its the one they recommend.
Each treatment is different but there tends to be an accumulative effect after a while with all of it.
You are doing very well. Give yourself a pat on the back!
Maggie x
Nuts in May
I remember being very tired from the radiotherapy.
I had six weeks of it (except for weekends) and it was neither painful nor uncomfortable, just tiring and a bother to drive for an hour there and then back every day. (not me, my husband or friends drove)
You will have a mask made if you are like me and you will have permanent tattoos. Nothing is very difficult, it’s the inconvenience and the lack of energy which got me down.
Best of luck. Still keeping my fingers firmly crossed.
you will get into a rhythm with this, and that will help you manage it. the radiation won't exhaust you immediately; it's the cumulative effect.
pace yourself. you are loved.
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